The Coalition to Transform Advanced Care launched a story collection initiative Thursday with a brief video featuring Senators Johnny Isakson, R-Ga. , Mark Warner, D-Va., and Sheldon Whitehouse, D-R.I., sharing their policy views and caregiving experiences.
American Heart Association CEO Nancy Brown chairs C-TAC’s steering committee, which oversees over 100 member organizations. The organization works on issues surrounding the care of Americans with advanced illnesses.
“We believe the voices of national leaders will inspire others,” wrote the organization. “Their story and those of other policy-makers will help people share their experiences, recognize the importance of having open discussions about serious illness and build awareness and action regarding advanced illness care issues.”
Research suggests that sharing personal stories is an important strategy to influence and inspire people to undertake the difficult but necessary discussions with their families, caregivers and health providers regarding advanced illness care, according to C-TAC.
Written stories from people of all walks of life are available on C-TAC’s consumer website, CareJourney.org, designed to engage others facing serious illness and assure them they are not alone, according to the organization. The website focuses on care options, spirituality, caregiving and financial options.
C-TAC is a national non-profit, non-partisan alliance of patient and consumer advocacy groups, health care professionals and providers, private sector stakeholders, faith-based organizations and health care payers with the shared vision that all Americans with advanced illness, especially the sickest and most vulnerable, will receive comprehensive, high-quality, person- and family-centered care.